Getting to Know Our Social Health Network Members

several mouths with speech bubbles show a sun, scribbled words, and a network of people

The new Social Health and fitness Community (SHN) provides room to hook up with other individual leaders. In August, we posted several prompts to the Social Wellbeing Network Fb web page to act as springboards for knowledge one a different and forming connections. Group members had a lot of insights to share!

How summertime heat influences them

One of the thoughts we questioned was about surviving the summer heat: “We’re getting hardly ever-ending summertime in this article on the east coastline of the United States. Does heat have an effect on your health and fitness condition?” Overwhelmingly, the reaction was “yes!”

“Yes, really significantly, primarily for my Lupus. As well warm can cause a flare, so I have to stay great.”

“Yes!!! My mast cell disorder doesn’t make it possible for for wonderful temp command. The warmth improves my chronic dehydration and has an effect on the use time of my ostomy bag.”

“Heat only impacts CLL (persistent lymphocytic leukemia) patients if they’re presently enduring ‘night sweats,’ which some have. Include on major of that sizzling flashes that some of us also have – and it is like acquiring a microwave on the inside of!”

“I essentially do improved in warmer temperature. The humidity is what will make matters difficult for me.”

Their well being journey in 3 phrases

An additional August prompt requested about local community members’ wellness journeys: “If you could explain your wellbeing journey in 3 words, what would they be?” Many terms arrived up frequently.


Numerous respondents chose “empowering” as just one of their phrases. They have located strength in their well being journey. Sharing and foremost from health issues presents them a voice and a new objective.

“Unusual – disabling – empowering!”

“Realizations, hope, empowerment.”

“Empowering, standpoint, motivating.”

“Thriving, Empowerment, Hope.”

“Devastated, Prayer, Empowered.”


Yet another word a couple persons talked about was “humbling.” Living with chronic illness strips absent points that most men and women consider for granted. Health, uncomplicated movement, and carrying out each day jobs might be demanding. But these worries guide to classes that individuals by no means envisioned.

“Unexpected, humbling, strengthening.”

“Definitely humbling.”

“A educating moment.”


The theme of how challenging it is to live with long-term illness also arose. People today specially pointed to soreness, worry, and uncertainty.

“Confusing, unpleasant, mysterious.”

In the primary, Boring, can be DEPRESSING, occasionally Terrifying.”

“Learning, living, uncertainty.”

Their Connexion 2022 encounters

August was also the thirty day period of the annual Connexion meeting. This is a time to obtain, master from just one yet another, and listen to from Overall health Union leadership. Just one Fb prompt requested about ordeals at Connexion: “Thank you so much for attending day 2 of Connexion!! What has been your favorite session so far? Have you uncovered everything new?”


Several responses shared an appreciation for networking prospects, specifically the possibility to community with other affected person leaders who are section of the SHN!

“I’m truly making the most of meeting other client leaders, but session-wise I cherished finding out right now about networking.”

“The networking session was astounding. I can’t hold out to meet up with some new close friends tomorrow when we get to community once again.”

“I specifically beloved conference other client leaders in the networking session.”

Health-related gaslighting

An additional well-liked session was a person on professional medical gaslighting. Recognizing that other individuals are also dismissed and dismissed by health professionals felt affirming to numerous people today.

“So significantly . . . surely today’s gaslighting session.”

“The gaslighting panel was excellent!”

“Today’s health care gaslighting panel. The dialogue blew my brain in a superior way.”

Thank you

We are grateful to all those who engaged with these prompts! Thank you for becoming below and for all the function you do!

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